February 2010


Sometimes you just have to mix it up

We’re all guilty of it………….

The role we play at work…..or the time of day that we walk the dog…..the way we do our hair…or the exercise routine that we do….the time we go to the bathroom….the material we read…..on and on we could go. 

Some are good patterns……Some are bad. 

You get stuck…..stuck in the pattern of life.  Adults I think are the most vulnerable.  We like the way things are and we settle way to easy.  When you have a disease like MS….it’s easy to say: “But I work out everyday” 

Then you stop seeing progress……Then maybe it’s time to take another look. 

This is where it can get confusing.  

“What do I do next?” and “What is it that I need to work on the most?” 

If your like me…..the answer is usually: “Everything”  

That’s the frustrating part and that’s why some call MS a: “MyStery”.  

 

Update: 

“The February Flats………………..”

 

Well………my return to work has been marred by challenges.  

First it was my lack of walking practice. (It’s now much better)  

Then….a sinus infection. (still on antibiotics)  

Then…..adjusting to my new sleep schedule. (maybe adjusting to the dog too)  

Then…..the Olympics……LOL  

It’s been an interesting month to say the least.  Last night (yesterday afternoon) was my first real day of regular sleep it seemed like.  Early this month…..I was forced to use 3 vacation days to cover for the sinus infection (I have not earned sick time yet).  

Again…….I under estimated the adjustment to my other night life…..obviously.  

   

Now for the good news……..  

– My strength has not dipped much. (meaning: my recovery from the sinus infection was quicker than expected)   

– The MS fatigue still seems to have gone missing since stem cell.  

– I’m back to working out hard.  

– And I believe my post stem cell gains have sustained.  

Less fatigue since transplant – sustained    

Improved left arm circulation – sustained   

An improved gait – sustained/when rested……(hard to convince others when you’ve just worked out and they rarely see you perform when your freshly rested.  The trainers at the gym see the slow progress and I guess that is all that matters. )  

Improved communication with leg/core muscles – sustained/when rested  

Establishing some sort of Knee flexion. (Both legs) – (Progress is Slow, Slow, Slow……..probably the most frustrating part of this whole process…..)  

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As I said before:  

“I know that right now…I have the strength to walk.  It’s just that I lack the communication to my hamstrings, dorsi-flexors, hip-flexors.
 
The communication has improved in all of these areas since MSC transplant…..but when I tire….the nerve conduction fades quickly and I am then unable to move the particular body part very well.  I have seen much improvement with these areas when they are rested though…..so I am still hopeful for some future independent walking.”  

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All-in-all….February was a weird month.  This sinus infection has really thrown me for a loop and you must addmit…..my work schedule is sort of odd.  But I have high expectations for myself and to be honest….I thought I would have done better this month.  

I…..by no means…. went backwards.  And maybe I should give myself a break.  

What I can rest my hat on is that:…. I believe the strength is still there and once I finish these antibiotics this weekend……It’s back to full-time rehab.  

Until then…..Break a useless pattern and Be Well  

Todd

So how do you go from this….

In 2002...I bulit the bike of my dreams.....A serious road machine that I had wanted all my life. I road it a few years....then in 2006....MS left me with this "Colnago" that I could no longer use safely. My MS forced me to sell my "dream bike" in 2008. It was hard to let go...but now the wife has a serious "road machine" and loves it.

To this……………….

 

The Bike shop delivered my new "Three wheeler' today. This is a simular one that I now ride at work. They even gave me my own bike parking spot at work.

 

Swallowing the pride…..big time right now.  Yes,….the bike does look kind of “whimpy”.  But I think I’m going to paint it up “Flat Black” and put some “Flames” on it.  Make it look like an old “Rat Rod” car.

Plain and simple…….these bikes are going to give me the knee flexion and hamstring strength that I so desperately need right now.  

One step back…..to hopefully go forward some how.

With MS……..It’s always a step back…….But w/ stem cell now……hopefully we can turn it around.  My sinus infection is getting much better and I didn’t lose much strength. Slowly getting back to work…..and slowly…..ever so slowly…..I think moving in the right dirrection.

I haven’t rode anything since early 2006……..now…since stem cell…. I have the “will and the strength” to do so. The rehab continues.

Baby steps.

Be Well

Todd   

 

 

Feeling a little under the weather.........

Wife says to me Sunday:……”You probably have a sinus infection”

I used to get them all the time…..but haven’t had one in the last 8-9 years.

It’s now Tuesday……..and I must conceed………..she’s right again.

I’ll update soon but right now I’m trying to shake this thing and get back to work. I’ve been sick since last Thursday and haven’t worked out since. Something must be wrong.

Trying to get some meds/antibiotics today.

Be Well

Todd

Not as easy as I made it sound.........

Well…………first week back at work and all is OK. 

One regret I do have is:… I didn’t practice my walking as much as I should have these last four months.  Sure…..I’m stronger…….and the workout schedule going forward should be about the same…….but my walking with the cane took a little hit and I’m a bit out of practice.

During these last 4 rehab months…….I did a lot of strength training.  Training to the point where my walking immediately after was not good.  What needed to happen was…….later in the day…….I should have gone out and walked at little each day…….just to stay in practice. I blogged about not using my Bioness and that it was broken for a month……….hmmmmmm………It’s sure coming in handy now.

Working graveyard shift is also a change……but a change I welcome……something about this time of day works for me.

The first day back was a little rough…but as each day passed…….It got a little better and better.  Now Friday morning…….and things seem to be OK.  I soon will be as mobil as when I left back in September for stem cell. And oh yea’……..I’m working out Ten X’s as much!!!!!

I imagine it will take a few weeks  to get back in the swing of things…….but I think that would be of anyone working this shift.

I’ve also been gradually tapering back on “Baclofen”.  It’s an anti-spasmatic drug.  I seem to be walking better without it.  Something tells me that neural conduction is better without having this drug on board.

Sorry bout the not posting as much…….I’ve been busy focusing on my rest and getting settled in to this new schedule.

Be Well

Todd