Was stem cell an A+?............I wouldn't go that far.

There is no doubt that if I had the money and the time that I would do it all again…..deffinately.  And after six+ months…….I don’t believe that I have seen all the gains…….. that I believe…….are still to come.   

I’m settling back into work and have taken on the huge task of repaying what is still owed on the procedure and covering bills for 4 months of lost work time.  Things cost a lot more than I had anticipated (isn’t that always the case) and I missed more work than originally planned……but things have settled down and the “Small’s” are moving forward.   

I feel much better than before I left for MSC treatment.  My fatigue is pretty much gone and now my frustrations are left solely with “neural conduction”.  Simply put:  the message from point A to point B is not consistent/weak.  Example: “Lift knee and move foot forward”.  Sadly……thats how it is when you get to the stage of MS that I have…….every step…..you have to talk yourself through.  This is something that can’t really be seen by others. (Maybe a concentrated look on my face while walking) 

Trust me when I say:…….”Things are slowly coming more naturally in terms of mobility”……I still take the falls…..but now they are not so much of a surprise. The falls are more calculated and actually……I have fewer falls….come to think of it. 

Hmmmmm……………. 

And more good news on the bright side……I say that the communication is “weak”…..as before it was mostly non-existent.   

People say I look better.  And they are right…..I have put on some needed pounds and am much, much stronger in the legs and upper body/core.   

Mentally…..the procedure has been a Godsend.  Gone are the feelings of: “What do we do next.”  Gone are the fears of losing my job due to disease progression.   

I’ve become very impatient with the gains I’m seeing though.   

Wait a second………I said the word:   

“Gains”

that’s right……”Gains”   

Ask any person you know with MS and they will not mention the word “Gains” in regards to physical movement.  The individual w/ MS may have grown as a person (mentally or emotionally with acceptance of the MS Dx) but you will rarely hear a person w/ MS say they have had “Gains” in terms of mobility or physical abilities.   

This is what keeps me hopeful for the future and why I am also so frustrated with the slow progress. After 17 years of slowly watching the disease take from me my mobility and strength……..you can only imagine my impatient’s with thoughts of:…….  

…….”I see small improvements!”……..”So why can’t it go faster!!!!!!!!!!!!!!”……I keep asking myself  

Yes ……. the healing has been slow, (like:  a snail’s pace), but I believe it has begun. 

I think back to September…..before I left for transplant…….I honestly used to wonder:……

……..”What will I do if things don’t work in regards to this procedure?”  

“How would I make a living?”……I kept thinking to myself. 

 Scary thoughts.  Now all I want to do is see things pick up here in the shop so I can start working some overtime and make some money!!!!!!……LOL  

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The kids have started Baseball/Softball and that makes me happy….I love watching them do good in a sport that I never had the coordination to be successful at.  Lauren started the year where she left off last year w/ a hot bat.  (Nice double with 2 RBI’s)  

Nate is on a new team and it ramps up the first of April. 

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I am still  steady with the exercise and workouts at the gym and home. I have good days and bad…….but constantly my numbers at the gym continue to slowly improve w/ regards to strength and mobility.  

I have very high expectations…..so my progress after MSC has not been at the speed I would have hoped.  But when you can honesty use the word “progress”……. when talking about how your dealing w/ the MonSter then………… 

……….”you should just be thankful” …….as Mom would say.  

1st Semester Grade:….   B-

(Six Month Grade)

Be Well  

Todd

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